Monthly Archives: March 2017

I’m halfway there and now just sit or lay in bed wishing i could die

‎Sunday, ‎March ‎12, ‎2017
270 Thoughts Shared ADD MY THOUGHTS
I think it’s a damn shame that people that are in real pain have to suffer because of some that abuse Norco. isn’t it easy for a doctor to look at a patience’s medical history to tell if that patient is in real need for the pain medication?
It’s like withholding pain meds to an 80 year old because their afraid he will become an addict.

CHEL BWI MARCH 11, 2017 AT 6:24 AM
I too have experienced the cut more than half dosage after 12 yrs of actually holding the same job, attending family functions and just ” living” life w quality- all while still pain & miserable!! But it beat losing job after job due to attendance problems & missing all family functions & having no life!!! I’m over 50, live alone and NEVER abused my meds!!!! This is barbarric!!!!!

Oh please, I’m sitting here right now in so much pain, I’m writing this through tears,I have been laying in bed for the past couple days, not able to get up. I missed 2 doctors appts. this week because I couldn’t get up to take a shower to do these small activities.

I’ve applied for a scooter ride so I can get around. Then they tell me I won’t want to walk no more. Hell, I don’t walk now because of the pain. They want us to live on our own and not go to assisted living or nursing homes. What will they do when a bunch of us gets bed sores, infections and sepsis. I am in so much pain.

They took my oxycodone away from me a year ago. I have been suffering not from withdrawal but from excruciating pain in my spine, my joints, my hands, I have neuropathy in my feet so bad I cry all the time. I don’t sleep well. Maybe 2-3 hours a night. I can’t live like this. I want to die. I had been taking oxycodone for 2 years and it was only 10 MG’s. I never ask for more.

I took one in the AM and if needed 1 in the PM. That was all I took. I took 1-10 mg. at PM. of xanax to help me relax at night. I never took oxycodone and xanax together. And rest assured I know what I was doing, I was getting along so go9d then. Now can do nothing. I will go get cocaine if I don’t soon get something. They say heroin is like oxy, but cocaine is more like oxy. It takes away pan. Trust me on this.

I find it redundant that we have to suffer due to the that others use the medication to get high and/or sell them. I am a 51 year old woman who suffers from scoliosis, arthritis in both knees and my neck, fibromyalgia, three pinched nerves and much more.

I suffer as it is now cause my doctor does not give me enough to last throughout the month but at least I have so when the pain is intense. I have tried physical therapy, steroid injections, epidural injections everything there is and nothing helps. I might as well just lie down and die without my pain medication. that is the only thing that keeps me sane, my oxycodone otherwise I’d be in severe pain all day seven days a week. I will become so depressed i’ll be seeing my psychiatrist again. no need to punish us in pain for those who abuse them. This is just atrocious to do this to us.

I am the founder of The Chronic Pain Train. I suffer from chronic pain everyday. We believe in all forms of pain management. We do believe that trying to go through this alone is a difficult journey to take. Especially for anyone suffering through this opioid crisis.

I am offering a group for you to join and be part of a family from all over the world that suffers just like you. It’s amazing to see all the hope and inspiration that members offer. This is not an advertisement. It is simply an information on various pain types and support to go along with it. We hope to see you on The Chronic Pain Train.

After reading many posts of people that live in severe pain, and the Dr just says, I not prescribing you any more of your meds you have been taking for years, then automatically stop, can kill some people. So does any one want to bring up that part of stopping pain sufferers ??

Does anyone realize that they could possibly die, being denied pain medicine?

I have many illnesses, i have been disabled since 06/2006 and now after all these years i have my pain in a controlled condition. And i only take 1ER tablet in a 12hr period. and BTP medication 4 times daily.

I have always taken my meds exactly the way its written on the label, no more, no less. What makes me mad is finally years of trying this and trying that, I have had livable pain control, and now get it wiped away in a minute. Does anyone worry about withdrawals or what the alternative will be?? NO, nothing is written or said about this nightmare a person will go thru and most likely will not live through.

I had two sisters younger then me, both with disabling back problems, back surgeries x 3 with one sister and 1 with the other which put both in even more severe pain then what they had in the beginning. Well, both couldn’t deal with the pain, Dr’s wouldn’t help them, so they killed themselves. Yes, they both committed suicide.

Now with all the severe chronic back pain, leg & Knee pain, Fibro, so bad i can even participate in sex with my husband. I am dead serious. RCPD came from a failed surgery on my left knee, couldn’t find anything wrong, so labeled me with RSD, later found out it was not in my head, now its called RCPD/RCPS. I cant have back surgery as i will have the RCPS in the back even worse then the pain i have to this date. I live every single day in such pain, child birth was nothing compared to the pain i have day to day. And i had natural child birth with all 3.

RA in both hands, and RCPS in the left leg and foot. After being seen by 9 ortho surgeons in San Diego, all agreed
that was the reason my knee was in such horrible pain. After numerous letters to the Surgeon General, we were able to see a non bias Ortho surgeons (2) at Naval Hospital, San Diego, After 2 months of treatments and therapy, MRI, Cat Scans, They said I had RCPD. Again, asking what that was, same as the other 9 Doctors. So, at that time, I was referred to a pain management specialist.

After many appointments, he prescribed me Oxycodone and Percocet. Which made me nauseated all the time. But first, i forgot to say, i had the pills for almost 2 weeks, trying to talk myself out of taking the first one. I really had a hard time asking myself, do you need these? Then after the pain got so severely bad I finally broke down and took one Percocet. It helped a bit, not all the way, good but helped. I limited my self for months and after 13 hours in a ER room, sticking huge needles through my knee, seeing if i had any infection. It came back clear.

So, they said just keep taking my medication and 2 weeks bed rest, I should be fine. WRONG!!! It got even worse.
I had just received a promotion with the government in VA, and I had to come back home as i couldn’t do the job. I could barely walk. It was so bad, I asked the Dr if he would just cut off my leg above the knee. His reply, no you will just get the RCPS there and it would be even worse then it was now. I wanted to just die. I hurt so bad i wanted to die.
But my daughter said, Mom if you do anything, taking my life, she would not come to my funeral. For some reason that really hurt my heart.

My children are grown thank god, as if i were still raising them i wouldn’t be able too. After 6 months i was put in a disability status, i fought that one, but had 3 Dr’s and a Supervisors saying I was a liability to the company.

My life was over, no one wanted me, and i can even get out of bed. The pain was debilitating and couldn’t understand why no one would help me. They said there was nothing else they could do for me. Then being told i would live the rest of my life on pain medications, so i could have some QUALITY OF LIFE.

After all the years of trail of this and that, spinal stimulation twice, put me in more pain. PT till they threw their hands up and said NO MORE, Epidurals was my best friend then insurance wouldn’t cover, unbelievable. Then finally on only two medications and i can enjoy my life to the fullest.

AND NOW THEY WANT TO TAKE IT ALL AWAY. What in world am i going to do??? Just because of criminals selling and abusing the medication, we all have to suffer. Tell me WHY, With the techniques this country has, and you cant pick them out??? I ask you, why pick on the people that take them the way the Dr says to take them. Why are we being punished. Its so unfair it makes me ill. At one time there were no problems with this medication.

If you do what your doing to innocent pain sufferers, your going to have a higher number of deaths, then the ones who abuse and sell their medications. God, help you if you become a pain patient and have to live everyday and night in pain, you would have cut your own throats.

This is so unfair, its unbelievable. You have much larger problems then this epidemic. I want some one to explain to me, why it has to be done this way. What rights do the severe pain sufferers have?? Please answer the questions? I bet you cant.

I will bet my last dollar if its a member of their family suffering from chronic pain they will find them a way to get narcotic pain medication quick, fast, and in a hurry. Please don’t forget we did not ask for this pain we’re only asking for something to help us cope and live with it.

JOOH MARCH 6, 2017 AT 3:29 PM
I have been on pain meds for 20 or more yrs. I have had 3 back surgeries, hip replacement, permanent nerve damage in back because of them being compressed for so long as the doc wanted to wait till they blew. I have RA, Fibromyalgia, I can’t at times even use my hands especially with out my meds. This is so wrong. I went through pain management years ago, they gave me oxycontin. I took it one time and it made me deathly ill so I called pain management doc and told him I could not take this med. He had me take it in and dispose of it. which I did. I have never ever took meds without a doc giving it to me. Never smoked pot which I was totally against. I hear people say it helps them with pain and etc so I have decided to self medicate myself and smoke it. Haven’t yet but backing my self off pain meds and preparing for the pot. This is embarrassing to say me at 71yrs old is going to be a pot head. Listen up you people who haven’t lived our painful lives and put a stop to this. I don’t hardly leave my house and now have to figure out how im suppose to get to these unhelpful pain clients. This is a scam for more money from us I guess and being old they don’t care.

JO MARCH 6, 2017 AT 3:33 PM
I failed to say, I had epidurals like about 8 with contrast and it didn’t work, I had to much scar tissue and they couldn’t get through it to put the medicine on the nerves that they said needed it. I have tytania cages in my back and hip.

It is eugenics at its best!

oh of course no doubt. I thought the same thing. I bet none of their family members will be denied any narcotic fo.r pain

SHARIN.C. MARCH 6, 2017 AT 3:15 PM
I’m a 53 year old mother and grandmother. I contracted the awful disease of Adhesive Arachnoiditis class III in 2001 due to a botched myelogram procedure and epidural steroid injections using depo medrol. I’ve been in pain management for 16 years with no adverse effects from my medication. Now my pain dr. Is taking me down to HALF the dose I was on for years with which I was still in pain but able to function. I can no longer look forward to being able to plan for anything due the indescribable pain I’m in now. Not even spending time with grandchildren and church related activities that I found so much joy in. I’m trying as many holistic alternatives as I can find but still in terrible pain. I was always very careful and responsible with my medication. Never abusive or took any more than prescribed. Now my pain dr, is trying to tell me he thinks it was never really helping me anyway as he is explaining the intention to cut my dose in half. This has been a very thoughtless decision process for those that have chosen to come out with these “new guidelines “. People with chronic pain are not drug abusers that overdose. We only desire a quality of life. If there were effective alternatives, we would have already been accessing them. We need hope. This is shameful and heartless!

I’m a 62 yr. old woman with R.A., gout, Sjogren’s Syndrome, and Fibromyalgia. All of these diseases are excruciatingly painful. When I ask even my rheumatologist “what are we going to do about controlling my pain?” he, along with every other doctor I see, IGNORES my plea, gives me no reply, acts like I just made some sort of faux pax, leaves the room. I just spent 6 wks. completely bedridden because due to acute gout attack; time spent in tears & confusion. This is abuse. My medical history will show that I have no history of abusing pain meds. It’s hard to find a way to live under these conditions. Severe chronic pain ravages the mind and general health. They know this. Pain can KILL you. I feel this is beyond incompetence, it’s malicious.

this cdc attack on the suffering is nothing compared to what the governor of Maine has done. he passed a law that limits all patients to a max of one morphine pill equivalence for all patients by june, 2017 no matter what is wrong with you ,one pill . i have needed 9 methadone for severe hand enteropathy and pancreatitis, and back injuries . .after almost 15 years without one problem,i will get less than one.

i’m halfway there and now just sit or lay in bed wishing i could die. i see many for many health issues, and no matter what doctor i see now, they only see one thing on my chart.METHADONE. now every one of them treats me like i’m a drug addict . they do ignorant things like ,ask me why i have drugs for pain, and when i tell them what they ask, they get snotty and say, we don’t give pain medication here ,i just thought i needed to tell you that .

i never asked for anything and was not even there for the pain they ask about. i was at the hospital for abdominal pain over and over for a month and they just treated me like i was looking for drugs . they would poke at me hard and tell me i am constipated from me back pain med at that time and they took them away. well i almost died. gallstones had gone into my pancreas and it got so infected i went into shock .three weeks in ICU without food or water before they could even operate. now i an diabetic because it killed my pancreas. the poison from the infection damaged my nerves. i’m in pain constantly after that .now these same doctors say they will make everyone suffer. i am living in hell.

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